5km FUN RUN!! This was held on Sunday 14th October 2012 in Windsor Great Park. This was held on a significant date as it was ten years to the day that Sheenam lost her father to Huntington’s disease. The below was taken from an arcticle written By Simi Arora in Pardes Weekly.
On a crisp, autumnal afternoon of 14 October 2012, many will be joining in the Charity fun walk at Great Windsor Park to make Sheenam’s wish come true.
Sheenam’s father, Mr Harbhajan Singh Oberoi, sadly lost his life after battling with Huntington’s Disease for many years. A day after his funeral, Sheenam was devastated to discover she had inherited his condition at such a young age. When someone who is 20 or younger develops symptoms of Huntington's disease, they are classed as having Juvenile Huntington's disease – also known as JHD. Sheenam has been bravely battling JHD ever since. The progression of JHD is often quicker than the onset of Huntington's disease in most adults. Sheenam said: "For a while, I found it very difficult to motivate myself and simply lay on the sofa – not being able to get dressed or wash myself. The first weeks after diagnosis were difficult, struggling to come to terms with everything.” Sheenam wants to help others with the same condition and founded Sheenam's Wish on her 29th birthday on 5th November 2011. Sheenam's Wish is to help others with JHD, raising funds to enhance the quality of lives of young people with JHD, and providing some welldeserved treats for patients and carers of this devastating neurological condition for which there is currently no cure. Sheenam's mother, Paramjit, 58, described her daughter as an inspiration. She said: "When I asked her what she wished for, she said it was something she wouldn't be able to fulfil and that was to get married and have a baby." Out of that came her wish to give birth to this charity. That's her baby."
Only 100 families in the UK are known to be affected by JHD. Sheenam’s goal is to raise £10,000 by her 30th birthday in November 2012, and then give each family £100 towards making one of their own dreams come true. A 5km Charity Fun Walk has been organised to take place in the beautiful and scenic Windsor Great Park, close to Windsor Castle. This event will be taking place on Sunday 14th October –the day marks the tenth death anniversary of Sheenam’s father, when his life was tragically taken by Huntington’s Disease.
In order to raise this amount, Sheenam’s Wish is aiming to obtain at least 200 participants to raise at least £50 each. The Charity received a big boost from close family friend Kavita Oberoi “ I was completely overwhelmed when I saw Sheenam and found out about her wish. I couldn’t help myself but to donate £1000 to help Sheenams wish to get underway” Sheenam commented: “Receiving such a generous donation from Kavita is tremendous, and it has provided a big boost for everyone who is working hard to ensure I achieve my dream. Kavita already works with several national and international charities, and in addition to her donation she has kindly agreed to act as our patron, it means a lot to us” Close family friends Manmohan and Poppy whose children grew up with Sheenam, have also donated. £1,000.
Sheenams Wish recently sponsored a bowling event for JHD Patients in Stevenage.
HOLLYWOOD BOWL STEVENAGE LEISURE PARK, SIX HILLS WAY, STEVENAGE SG1 2UA NO CHARGE FOR PERSON WITH JHD & CARER INCLUDES MEAL FOR YOUNG PEOPLE WITH JHD ON MONDAY 9TH MAY 2016 11.30AM - 2.00PM
Sheenam Handing Cheques out at JHD Camp 2016
We have had the opportunity of distributing the £100.00 cheques. We personally handed out some cheques to families who attended the Jhd camp in May 2015 and June 2016. Unfortunately since we started the charity 4 young people have sadly passed on. Sheenam wanted to honour their lives by sending cheques to their loved ones so they could use the money towards a memory of their loved one. The families put the money towards memories of trees and having a bench with their loved ones name on.
